Hanging on by a thread

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My last post was written 4 months ago. In the daily battle I continue to experience with depression and anxiety, I lost the motivation and desire to write any more, faced with the familiar issues of lack of concentration, lack of interest, questioning the point of writing and sharing etc etc. However I have made a promise to myself for the dawning of a new year to try to commit to giving blogging a bit more of a go. The last few months have been truly horrendous and I have reached new depths which I never knew existed, and at times the only source of comfort has been reading the shared experiences of those battling with the same issues. So I have decided that I want to try and do the same, and to find some way of getting a positive out of all of the pain that I and my family have experienced these past few months.

Given my lack of regular posting I will give a very brief update on my current “bad spell”

  • In March 2016 I was made redundant from a job which I had been doing for the previous year and a half. This was due to a downturn in the industry I worked in and came as a real blow because I had a great relationship with my boss and the job suited my personality and health issues.
  • Started new job in April 2016 but had to leave job after 2 weeks due to a recurrence of severe depression and anxiety (my previous bad episode was over 10 years ago in 2005 – I foolishly thought I had come out of that a stronger and wiser person and that it wouldn’t happen again!)
  • End of December 2016 – I still haven’t returned to paid employment yet and continue to struggle with anxiety each and every day. Depression is also still a big issue, but this is where it all gets a bit unclear. Am I still clinically depressed, or is it just that I am living with the aftermath of the severe depression a few months ago and the massive impact this has had on my life and the life of my immediate family.  Given the lack of hope, joy, positivity and confidence I currently experience I would most definitely still consider myself to be in the midst of a depressive episode.  And after 9 months its very difficult at the moment to see what is going to lift me out of that.
  • As a result of what has happened this year we are faced with no option but to sell our family home at the start of the new year. Therefore I ask myself on a daily basis “Can things get any worse?” Looking at basic human needs and values – the role of the male has traditionally been to provide shelter/a home for their family.  In terms of things that are going to destroy any last remaining self worth and pride in a man, surely it can’t get much worse than having to move your wife and children out of their home because you can’t afford to pay the bills anymore. In my view this is truly horrendous, and when it is because of a health issue and at a time when one is already experiencing anxiety and depression on a daily basis, it is extremely hard to live with.

As I reflect on 2016 I wanted to share some of the things I have learnt during my experiences of the past 9 months:

  1. Having thought in years gone by I had hit rock bottom, I have learnt of new depths way beyond what I previously thought existed.  I think one of the main reasons for that is that I now have responsibilities which I didn’t have previously – a wife and 2 young children.  Therefore, the ramifications of any bad episode are now far greater than they ever were before.  I don’t just have myself to worry about. However, whilst my wife and children are a responsibility I never had before, they are the reason I keep going and get up every day and try to fight this illness.  Whilst at the moment I don’t feel that I am able to offer them much as a husband and father because of my difficulties, they give me a purpose, when all else seems lost. My wife asked me just before midnight last night (new years eve) what positives I could take with me into the new year.  My response was that despite things getting as bad and as tough as they have, I am still here and have made it this far, and as a family unit we are still together.  I will try my best to remind myself of that on a daily basis.
  2. This illness is sticking around – yes I’ll hopefully get back to long spells of being “well”, but most likely dark times will return again, based on the experiences of my life to date. After recovering from previous episodes, due to a combination of youthful optimism, lack of true understanding of my condition, and denial, I thought I had learned and experienced enough to stop it from returning. How wrong was I! And no one ever suggested otherwise, including the medical professionals who treated me and could see my case notes going back to my teens.  But I realise they would never have been in a position to tell me to prepare myself for recurring episodes, firstly because they wouldn’t want to have put a limit on what I could achieve as I grew up, and also they had no way of knowing whether or not I would relapse.  As I sit typing this blog tonight in a house and lifestyle which I can no longer afford, a huge part of me wishes someone could have told me all those years ago to build a life that was fit for purpose given my recurring depression and anxiety, rather than the life I did build thinking everything would be fine – a professional career which came with expectations to always be able to perform/function at a high level (this ultimately has been the undoing of me!), nice house, nice holidays etc etc.  I am filled with regrets, but then I suppose most of us probably are for varying reasons!
  3. Stop expecting others to understand my illness, my experiences and what’s going on inside my head. This has been a really tough one for me, particularly when it comes to family members, and it is something I still struggle with on a daily basis. I am learning that is unfair of me to expect others to understand.  A couple of well known quotes now stick in my head. “Don’t expect everyone to understand your journey especially if they have never had to walk your path” and “Sometimes the people around you won’t understand your journey. They don’t need to, it’s not for them.”
  4. Stop hiding who I am.  Become a beacon of light to others who are living with the same disabling illness, as several others have been to me.  Reading the stories of others in the same boat has kept me going over the last few months. It has provided me with a source of comfort I have been unable to find anywhere else.  And the extremely touching comments and messages I have received to my first blog posting have really inspired me to keep writing and keep sharing. A couple of months ago I read an article on the website “The Mighty” by a contributor called Kelsey Rozak.  I found one paragraph in particular extremely powerful and it is something which gave me a feeling of purpose and has stuck with me.  Kelsey’s words were as follows:

“I also share my story to shine my light for others. For the people who can’t navigate the high seas of sadness, I am the lighthouse. For people who can’t find their way through the depths of depression, I am a flashlight. I shine the way because others have shined the way for me. We cannot be afraid of this light. You must shine it for others to guide them through this confusing and terrifying journey. It is a beacon of hope on cloudy days and a sign that we are never alone. Collectively, we will bring light to this condition and make sure no one is afraid of the dark ever again.

I too shall make that my goal, so that some good can come out of my pain. Thank you Kelsey.

 

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11 thoughts on “Hanging on by a thread”

  1. Sorry to hear that things have been so hard for you. Several years ago I was made redundant from a job I had grown to hate. I felt so free and relieved at the time, and had a few months of relaxed living on the redundancy payout. I didn’t want to go back to the kind of work I’d been doing and tried to find other forms of employment, but in the end I left it too long and, unaware at the time that I had long-standing depression, I found it hard to focus on the essential things required to get a new job. I have remained unemployed and now have terminal cancer (with a very uncertain time remaining), so life is even harder. I don’t know where you live, but in the UK it is possible to receive state benefits to cover housing costs.

    Do keep the blog posts coming. They don’t have to be so long 🙂

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    1. Hello. Thank for the 2 comments you have posted on my blog – it means a lot to me that you took the time to read and to get in touch. Sorry for not acknowledging sooner – with the kids being on holiday and my wife working a lot it has been a bit manic! I am very sorry to hear of your terminal cancer diagnosis and to be honest I just don’t know what to say because I can’t imagine how awful that must be nor will anything I can say provide much comfort! As if the depression isn’t enough to live with….

      You are so right about the benefits system – its not until one actually goes through the claim process that you really understand how faceless and dehumanising it is. When I phoned to make a claim for ESA the way the woman spoke to me was disgusting – she said in a very dismissive tone “you do realise this is a number for people who are unable to work due to illness don’t you”. I actually ended up challenging her on her tone and she was a lot nicer. I am a qualified accountant and I would say that I struggle to understand the system, what I am/amn’t eligible for etc etc – so I can’t imagine what it would be like for someone with limited financial awareness. It sounds like it has gone downhill a lot over the last few years. And what has come as a real shock to me is the lack of certainty regarding how long you will receive a particular benefit for – makes it almost impossible to plan your finances.

      And your point regarding a lack of support for returning to work is something I feel I currently battle with on a daily basis. A bit like the benefits system, only by experiencing it could someone believe how lacking it is. In my view our government pays a lot of lip service to mental health care, but the reality is very different.

      I welcome your feedback on the blog and agree completely with your point on the length – I was thinking that before I posted the last one but just decided to post it because I couldn’t decide what to cut out. Someone else has made the same point. I will definitely take on board. Take care and thanks for sharing.

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  2. After an unfortunate experience where I was fired right after Thanksgiving, I understand now why you want to remain anonymous.

    I encourage you to follow bloggers like Carol Tice, Linda Formichelli and Sophie Lizard. They all offer extensive advice on how to turn writing into a business. They’ve helped me tremendously. It will allow you to work on your writing skills, get some income and do so without having to deal with being outside.

    As I am in the middle of an anxious and depressive mode after being fired, the best thing is to figure out how to take care of myself so that I can do a good job when I actually start working again. I hope you have access to proper treatment so that you can feel whole again.

    Liked by 1 person

  3. I read your article on The Mighty and found this blog. Knowing that there are others in the same boat might help you a little, but your words are definitely helping me. After 40, yes 40 years of struggling with the same stuff I’m starting to think I can deal with it. My favorite quote that sometimes helps is by Charles Bukowski: What matters most is how well you walk through the fire. Thanks

    By the way shorter posts can be easier for some people and a couple of photos help get your message across.

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  4. 4 months since you last posted? I have been trying to start a blog for 8 years! I managed to get a site up with just a basic theme, and I tossed up a note from my journal just to have something. So I am kind of jealous that you actually did it! Good for you! I keep trying, myself. If anyone is interested, my “blog” is called Ramblings of a depressed Ninja. Keep writing!

    Liked by 1 person

  5. I truly feel your pain. I have dealt with depression for 40+ years, and am just coming out of a bad period. At least I hope I am. Keep on talking, and know that you’re not alone!

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  6. You are definitely not alone. I really appreciate you opening up about how it affects you as a man. I often get caught up with how much it sucks to be a woman with this (no kids, no marriage, career, etc.) I’ve honestly never thought about how men with mental illness are struggling with society’s expectations as well. I regret that failure.

    Keep writing, even if you don’t hit publish. You do have a gift and we all need to spread the light.

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  7. Just wanted to say at 40 I have decided not to lie about my condition anymore. Because of shame of being ‘depressed’ and unable to function I have been so afraid of facing other people’s judgement. I had never even seen it as an illness myself given that I had been in on mess and in and out of therapy for 25 years! Like you I am going through an extended period of depression with anxiety. I suffer from atypical depression which means I can sleep on and off for days at a time. That doesn’t really work when you are a mum and have to work.
    I wanted to say I do hope you come out of this, that you find you and your family and home and a base and some stability. I don’t know about you but I am fed up being scared. I think as long as you share, keep being honest…’this too shall pass’. We have so much to keep going for. Much love.

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  8. Thank you, I struggle with that question so many times. It has gotten to a point where I try to avoid people. When someone asks me if I am working, they say “oh, a lady of leisure. ” I really don’t know how to respond and get so uncomfortable.

    Liked by 1 person

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